No. 1S (2021): Law, Genetics and Genomics: An Unfolding Relationship

View No. 1S (2021): Law, Genetics and Genomics: An Unfolding Relationship

Edited by Marta Tomasi, Simone Penasa, Alessia-Ottavia Cozzi, and Deborah Mascalzoni

DOI: https://doi.org/10.15168/2284-4503-20211S

Published: 2021-05-12

Full Issue

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Editorial

Law, Genetics and Genomics: An Unfolding Relationship

Marta Tomasi, Simone Penasa, Alessia-Ottavia Cozzi, Deborah Mascalzoni

1-5
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Forum

Law, genes and bioethics: a biomedical perspective

Michele Simonato, Gianluca Verlengia, Guido Barbujani

7-11
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Genetic Information: the individual, the family and the Humankind

Emmanuelle Rial-Sebbag

13-16
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Basta con il biolaw: What about knowledge and trust?

Bartha Maria Knoppers, Michael J.S. Beauvais

17-21
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Overcoming legal obstacles to international direct-to-participant genomic research

Mark A. Rothstein

23-27
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Gene editing: do we need a universal approach?

Carlos María Romeo Casabona

29-32
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Posthuman dignity and the problem of the body

Zachary R. Calo

33-36
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Troubling historical roots and contemporary challenges

Breve storia della genetica: cronologia, concetti, temi

Ilaria Ampollini

37-48
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A brief history of genetics: Chronology, concepts, and themes

Ilaria Ampollini

49-60
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The legacy and future of race between science, constitutional lexicon, and political action

Marta Tomasi

61-78
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Incidental findings and the right not to know in clinical setting: constitutional perspectives

Alessia-Ottavia Cozzi

79-109
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Newborn screening and informed consent in a constitutional perspective. The Italian "model" and some knots still to be untied

Caterina Di Costanzo

111-127
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In ordinary times, in extraordinary times: consent, newborn screening, genetics and pandemics

Roger Brownsword, Jeffrey Wale

129-153
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Venire senza provenire: il diritto di accesso dell’adottato alle proprie origini nelle strettoie dell’anonimato materno

Stefano Agosta

155-170
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Coming without coming from: The adoptee's right of access to origins within the constraints of maternal anonymity

Stefano Agosta

171-185
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Biotechnologies, Birth and the Right to Know One's Genetic Origins

Lucia Busatta, Simone Penasa

187-208
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Is it possible to place limits on the self-determination of your own genetic data? Certainly, and there is an urgent need for it!

Iñigo De Miguel Beriain, Daniel Jove

209-222
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You can't put the genie back in the bottle: on the legal and conceptual understanding of genetic privacy in the era of personal data protection in Europe

Santa Slokenberga

223-250
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Collection and sharing of genomic and health data for research purposes: Going beyond data collection in traditional research settings

Mahsa Shabani

251-260
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Ethico-legal analysis of international sample and data sharing for genomic research during COVID-19: A South African perspective

Safia Mahomed, Ciara Staunton

261-276
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The dynamic consent of the Cooperative Health Research in South Tyrol (CHRIS) study: broad aim within specific oversight and communication

Roberta Biasiotto, Peter P. Pramstaller, Deborah Mascalzoni

277-287
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A New Era for Biotech Patents? Empirical and Theoretical Considerations on the current Patent Dilemma

Nicola Lucchi

289-303
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From "familial searching" to "forensic genetic genealogy": new frontiers – and challenges – of DNA analysis in criminal investigations

Giulia Formici

305-328
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Forensic genetics: the evolving challenge of DNA cross-border exchange

Lucia Scaffardi

329-342
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Views into the future

No sharp line between the natural and the synthetic: biothetics and challenges to regulation

Mirko Đuković

343-358
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Human germline genome editing and human rights law: a "brave new world" is not here to come

Ludovica Poli

359-368
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Decisioni in materia di editing genetico e partecipazione democratica. Un ambito privilegiato per l’applicazione dei principi della democrazia deliberativa?

Giada Ragone

369-382
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Gene editing decisions and democratic participation: A privileged area for the application of the principles of deliberative democracy?

Gaida Ragone

383-395
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Children's civil liability actions regarding parental germinal gene-editing decisions

Ekain Payán Ellacuria

397-405
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When parents look for a "better" child (reproductive choices and genetic planning)

Vera Lúcia Raposo

407-427
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What is wrong in extinguishing a species? Charting the Ethical Challenges of using Gene-Drive Technologies to eradicate A. gambiae vector populations

Marco Annoni, Telmo Pievani

429-444
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About coevolution of humans and intelligent machines: preliminary notes

Amedeo Santosuosso

445-454
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